top of page
This site was designed with the
.com
website builder. Create your website today.
Start Now
F
AMILIES OF
SMA
C
HARITABLE
T
RUST
(
S
PINAL
M
USCULAR
A
TROPHY)
脊髓肌肉萎縮症慈善基金
PATRON
Prof. Sophia CHAN Siu Chee, JP
The Secretary for Food and Health, HKSAR
於1998年成立
已獲豁免邀稅慈善團體(編號:91/5292)
主頁
關於我們
甚麼是SMA
資訊及刊物
你的參與
聯絡我們
資訊及刊物
最新活動
新藥新希望
新聞及故事
醫療報告及刊物
下載表格
Latest News of FSMA
New Drug New Hope
News & Stories
Medical Reports & Researches
Download Forms
【母親節】罕見病少女大學畢業專幫同路人 媽媽:健康就好了
脊髓肌肉萎縮症慈善基金(FSMA)會員馬汐嶢及母親最近與香港01的社區專訪已經出爐,當中記述了汐嶢及母親的一些生活點滴及體會。請點擊以下連結以瀏覽更詳細內容:https://www.hk01.com/%E7%A4%BE%E5%8D%80%E5%B0%88%E9%A1%8C/...
分類 Categories
全部 All
All Posts
(214)
214 posts
新藥資訊 New Drug Information
(21)
21 posts
社會關懷 Public Awareness
(89)
89 posts
會員活動 Member Activities
(55)
55 posts
籌款活動 Fund-raising Activities
(66)
66 posts
FSMA新藥足跡 Footprints
(14)
14 posts
最近項目 Recent Posts
Sales of Raffle Ticket 2020 慈善獎券義賣 2020
SMA Treatment: Latest Update Webinar 脊髓肌肉萎縮症治療最新資訊
治療SMA新藥 ”Evrysdi (risdiplam)” 正式獲FDA批准面世
What would you do when faced with a challenge – give up or overcome it? 面對困難,你會選擇放棄還是迎難而上?
“With love, nothing is too difficult.”「只要有愛,任何事都不會困難。」
Invitation to Sponsor FSMA’s Website Revamp 翻新FSMA網站籌款項目
NGO - Open Letter to Funders 致資助者的公開信
參考日期 Archive
September 2020
(1)
1 post
August 2020
(2)
2 posts
May 2020
(3)
3 posts
April 2020
(2)
2 posts
February 2020
(2)
2 posts
January 2020
(4)
4 posts
November 2019
(1)
1 post
October 2019
(1)
1 post
May 2019
(1)
1 post
April 2019
(1)
1 post
March 2019
(1)
1 post
January 2019
(1)
1 post
關注我們 Follow Us
bottom of page