(SPINAL MUSCULAR ATROPHY)
PATRON
Prof. Sophia CHAN Siu Chee, JP
The Secretary for Food and Health, HKSAR
於1998年成立
已獲豁免邀稅慈善團體（編號：91/5292）
About Us
Families of SMA Charitable Trust is founded in 1998 by professionals from various business sectors and concerned parents of children with Spinal Muscular Atrophy (SMA) who understand so profoundly the suffering of the SMA victims and their families. Through providing financial assistance and donating medical and para-medical equipment, it helps to relieving hardship and patients suffering from this disease. SMA is a form of neuromuscular disease which will worsen patients’ physical conditions along with time. Many victims are young children who are rendered severely disabled and require specialized medical care and advanced medical equipment.
We run self-help programmes and outings for SMA patients and their family members to promote common support and understanding. We also support top notch international medical research in finding treatment and an early cure for this terrible disease.
Our Mission Statement:
To help in the relief of hardship and suffering of patients afflicted with Spinal Muscular Atrophy (SMA) and their family members.
Our charitable objectives:
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To provide practical and emotional support to patients with Spinal Muscular Atrophy (SMA) and their family members in order to facilitate proactive health management as well as aggressive medical intervention when necessary;
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To provide support services, donation and/or free loan of medical equipment and other para-medical items to needy SMA patients and their families so that they can continue to seek proper medical help and be able to face challenges associated with SMA;
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To assist patients and their family members in overcoming and coping with the difficulties
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To manage a Central Registry of SMA patients in Hong Kong for the enhancement of co-operation with health sectors and serve as research base;
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To promote public awareness, understanding and education of SMA patients, their families, professionals on health management and the latest medical research findings and discoveries.
Our Patient Services Expenditure:
